the body requires maintenance

I have a check up tomorrow. It's been a good 2 months since things started to cascade again. I'm happy to report that baclofen has seemed to have tamed the rapid return/onsent of dystonia. It took awhile and some nasty side effects including mood swings, lethargy, and anxiety but that passed after a week or so. I'll have a symptom occasionally and will feel off if I forget to take it but otherwise it seems to be working.

A former colleague messaged me regarding my recent posts and shared the history of her own malady. She's a few years older than I and spent a much longer time wondering about a seemingly unexplainable condition that she only recently found an answer for, Ehlers-Danlos syndrome. The condition has been known to be treated by DBS AND Botox injection.. so she asked me about it. The body will permanently start to tolerate the effects of Botox the more you use it so it has to be used sparingly or else it will no longer have effect.