Wednesday, March 01, 2006

emailing my employer

Hi Michele and Jack,

I am unable to log into the network to access email again, I think my password expired. If you have any questions please feel free to call me.

I know that a lot of people have probably been asking questions as to where I've been, so please feel free to share updates on my status as explanation.

My appointment with the Parkinson's Institute was bumped up and I was able to see a movement disorder specialist sooner than later. I was diagnosed with dystonia, a neurological disorder in the same family as Parkinson's disease. In dystonia, the brain causes involuntary muscle contractions similar to the shaking found in Parkinsons. My particular case of dystonia is called cervical dystonia, in reference to the uncontrolled movements in my neck. About a month ago I was unable to walk and found it difficult to feed myself due to these movements.

There is no known cause or cure for dystonia, but the doctors believe they can provide treatment to get me functioning again. Two weeks ago I underwent a procedure called chemodenervation in which botulinum toxin is used to shut down the activated nerves. I am still seeing my doctor weekly and am currently taking Parkinson's related medications. I've shown some improvement since and am now able to use a computer again but still don't find it safe to drive and have problems writing. I spoke with my doctor yesterday and he is confident that through a combination of the chemodenervation and medications I will be close to 100% again. I apologize that the process in finding the right diagnosis and dosages has taken so long.

Again, thank you for being patient with me.

Thanks,

RJ


http://www.dystonia-foundation.org/

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